About

Welcome to my blog.  Never in a million years did I ever think I would be dealing with cancer at 29 years old.  I am newly diagnosed as of August 7th, 2014.  So far what I know is that I have Primary mediastinal large B cell lymphoma. I currently have a soft ball size tumor growing in my chest near my left lung and heart.  How do I know this?  See below to learn the story. I chose to start a blog for a place where family and friends can easily be updated, but also for myself so I can have a place to document my journey going forward and to try and stay positive and to learn to look for the good in life when I might be struggling to find it. This is the beginning of a very new chapter in my life.  A series of chapters that I know will change me permanently and forever, physically and spiritually, but only for the better.

I began having severe shoulder pain about two and a half months prior to my diagnosis. I attributed this pain to a minor car accident that I was in a week prior. I went to the doctor. Doctor prescribed me pain pills and physical therapy. After weeks of physical therapy and feeling it wasn’t working. I decided to go back to the doctor on Monday July 28th. That decision changed my life. My doctor ordered an xray of my shoulder and I went home. Shortly after getting home I received a call from my doctor asking me to come back in for a chest xray. They said they saw something in the corner of the X-ray and needed a different view. My doc called me with results that same day to tell me that the Xray confirmed their suspicions. I had a large “mass” on my left lung. I still wasn’t too worried at this point because who knows what a “mass” really is. A CT scan was ordered immediately. I then got a call at 6:30am the next morning from my doctor confirming that I have a soft ball size tumor on my lung and I have to see a lung specialists right away. At this point I was scared. I knew it wasn’t good. For two whole days I had to wait and wonder what this was. Finally, two days later I was able to see the lung specialist who told me that this is NOT lung cancer, but it looks like lymphoma and I was sent immediately over to the thoracic surgeon right then and there.  Next thing I know I’m sitting face to face with the doctor who was looking at my scans, and telling me that he is 99% sure that I have lymphoma, which is a blood cancer. You would think I would have cried or dropped to my knees but that didn’t happen. It was almost like being in shock. My mind just couldn’t handle the information coming in. Everything was in slow motion and I felt like I was under water. I’m only 29 years old. I have so much I want to do still. I felt like all my dreams were crushed. And if I make it out of this alive, I will never again be just a normal healthy person who expects to live forever. My entire future was now a question mark. Why me? I just could not believe what was happening. I had no words, no tears. All of that got suppressed. At this point there were only two choices. To be negative and bitter,  which won’t help my healing process. Or get it together and keep moving forward. And that is what I did. I did it because I had to. I’m not even sure it was a choice. It just happened. Of course the thought of dying has crossed my mind on more than one occasion. And yes I have spent countless hours on google searching my diagnosis and I have had my fair share of angry outbursts, shoving everything off my kitchen counter and kitchen table, destroying everything I see while feeling completely helpless. But honestly, I haven’t had the time to really sit and dwell. Time was moving so fast, but waiting for my appointments seem like a lifetime! The doctor then ordered a biopsy of the mass. I was put under general anesthesia and the doctor was able to go in through my side under my armpit so I would not have a scar across my chest. The surgery went perfect. He was able to do it in one incision instead of three as originally planned. After surgery I was very much out of it. Very sick from the anesthesia but recovered quickly. A couple very LONG days later I received the phone call that I had been waiting for. The results matched my doctors suspicions and I had cancer (stage 4) at 29 years old. I was then set up for additional testing for Friday August 15. These would be the final tests necessary to determine how far the cancer has spread and what treatment will be needed. Telling my family that I had cancer was absolutely devastating. I will never forget their faces. Refer to my posts (archives at the bottom or side of page) going forward

17 thoughts on “About

  1. Jenny Boggs

    You are so incrediably strong, I greatly admire you for that. I love that you told yourself the two options you had, and decided to stay optimistic. You are exactly right that it will help you in this journey. I love you!!!

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  2. Tim G. Horton

    Hi Amy, first my heart goes out to you and your family regarding your medical diagnosis.

    My prayers and best wishes go out to you in your time of need for positive wishes and thinking.

    Stay strong and positive not just for you but for everyone around you espically the young ones. Don’t forget to pray every day to God for strength and a positive outcome.

    Love

    Your cousin

    Tim

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  3. Rachel

    I have no doubt you will plow right through this! If there’s one thing have learned about you is that you are a strong woman! No way this is gonna keep you down, it’s not your style 🙂 Onward!!! God’s has already been preparing you for this journey.

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  4. Jennifer

    You are so courageous and strong. I believe Dr. Doctor’s have the power to beating cancer and so do you. I’ve known many people who have won. It with make your stronger and thankful.

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  5. wagsgoezhard1988@gmail.com

    Amy,
    Hi gorgeous…its Kara. I had no idea and I just want you to know that you will be in my thoughts and prayers….stay strong, have hope.
    Kara
    Don’t let fear throw you off balance!!!

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  6. mary fiedler

    I love you Amy! You are such a role model to all of us.
    Everything is going to be fine. God has a plan for you, and he has your back. Lol
    If you need anything, call or text me day or night.
    Aunt Mary

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  7. Desiree Speiker

    Amy you are in my thoughts and prayers. Stay strong, you are an amazing courageous woman and know you will get through this. You have a great support system which you can turn to if you are ever feeling unsure. I will be thinking about you during this journey. Take care

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  8. Tess

    Hi Amy!
    I just want you to know that I am keeping with your updates and am really thankful that you are posting them. I can’t find the words to express how incredibly impressed I am with your attitude throughout all of this. You are a strong woman and I know you will beat this! I am thinking of you every day!
    Tess

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  9. Katie Shocinski

    Hi Amy,
    You are so incredibly strong! I admire your choice to stay positive and hope such a beautiful choice spreads throughout everyone. I will be praying for you! And if you need anything, please let me know.

    God Bless,
    Katie

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  10. Bv&Terry

    It’s good to hear you are feeling better then you sounded on Wednesday when I called. Thanks goodness Jon took you into the ER. We are still thinking of you.
    Bev and Terry

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  11. Nichole Menton

    I am praying for you Amy, I am also following your courageous story. Thank you for opening up to help people understand. Stay strong!

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  12. What an inspiration you are and I am honored you are following my blog. Of course if there is anything I can answer for you nutritionally or help you find comfort in our Lord, please don’t hesitate to ask me. I’m always here for you. With your strength of character and positive attitude I am confident you will get through this. Much love and blessings to you my new friend,

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